Awareness Week 2024: Time Matters in MS

The content below is reproduced with the permission of MSNZ.

You can make a donation to support the work Wellington MS does enabling people with MS around greater Wellington to live their best lives by following this link https://fundraise.msnz.org.nz/faceofms/ms-wellington or through this QR code.

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Each year, Multiple Sclerosis New Zealand runs a nationwide campaign to increase awareness of multiple sclerosis, a chronic condition affecting more than 4800 people in Aotearoa New Zealand. We aim to empower people with knowledge, advocate for better access to treatments and assist people to live well with MS.

This year Multiple Sclerosis NZ (MSNZ) is launching a new 3-year campaign, focussing on recognising the early symptoms of multiple sclerosis and highlighting ‘Time Matters in MS’.

The campaign seeks to educate people about the possible early symptoms so that more individuals can recognise the signs, take action and get a timely diagnosis.

By making the public aware of the symptoms and the reality of living with multiple sclerosis, MSNZ hopes to develop a more understanding and supportive environment for people affected.

Across the nation, regional societies are conducting street appeals and arranging events to raise the essential funds required to enable them to support individuals with MS as well as their friends, families and whanau in their local communities. Please consider supporting them any way you can.

Time Matters in MS. But Why?

With 134 new people diagnosed with MS each year, and 94 experiencing their first symptom, through our outreach, we hope to encourage those experiencing symptoms to seek help and know that a diagnosis of MS isn’t as scary or life-altering as it once was.

Studies funded by MSNZ show a 4 ½ year delay from the onset of symptoms and diagnosis. This delay can have a profound effect on long-term brain health outcomes.

A recent study published in the Journal of Neurology found that patients who began treatment within six months of their first symptom had a 30% slower rate of disease progression compared to those who started treatment later. These findings highlight the critical window of opportunity for early intervention.

While there is currently no known cause or cure for MS, thanks to advocacy for access to treatments, research, information and support services, people with MS can live long and fulfilling lives. MS is a manageable and treatable condition and the earlier someone is diagnosed the greater the protection of their long-term brain health, maximising the likelihood of treatment success, reducing or delaying disability and disease progression. With earlier access to diagnosis, treatment and lifestyle changes, people with MS can continue to live their lives, enjoying family life, their careers, doing what they love and achieving their dreams.

Scientific evidence supporting early diagnosis

Studies have shown that treatments for MS are more effective the earlier they are initiated. Delayed access to treatment can lead to disease progression, making it harder to manage symptoms in the long run. Early diagnosis enables patients to start therapies that can slow the progression of the disease, reduce the frequency of relapses, and maintain a higher quality of life.

Know your symptoms

As the symptoms of MS can be complex and unseen, we recommend keeping a symptom diary. Note when symptoms occur, how long they last, and any factors that seem to trigger or alleviate them. If you are unsure on how to talk to your GP about possible MS symptoms, taking someone with you to appointments can help you articulate your concerns more clearly.

Our research shows that there is currently a 4.5 year delay on average between the onset of symptoms and diagnosis. This is not acceptable. Our campaign wishes to increase awareness of MS symptoms, encouraging people to seek medical advice if they are concerned about new, prolonged symptoms.

Advances in research and treatments means MS is a manageable and treatable condition, but Time Matters. Early diagnosis could be the key to maintaining a higher quality of life.

Engage with our campaign during Awareness Week by following, liking and sharing our social media posts on Facebook and Instagram and keep an eye out for exciting coverage on the Stuff website.

Further information

MSNZ encourages resiliency, self-management, preventative services and principles of living well with a chronic condition. By providing evidence-based information that supports and encourages people to take control of their diagnosis and condition. Encouraging positive attitudes and life-style modifications, which can have a profound effect on symptom management and maximising opportunities for long-term health and brain health outcomes. We endorse the international MS Brain Health Standards as the benchmark of excellence in MS care in NZ.

About MS Brain Health
Time Matters in MS – Executive Summary
Time Matters in MS – Full Report

Symptom Management Resources

Living Well with MS
What is MS?
Preparing for your neurologist appt – MSNZ
MS Diagnosis Card
MSNZ Facts about MS

Support in Your Communities

List of MS Regional Societies
Organisations

Resources for all, including children, families, employers and health professionals:

MS affects a wide variety of people in different circumstances. Those providing support often need advice and information to help those they care for living with MS. The below are curated resources that may be of assistance to those looking for information. Anyone providing support to people living with MS is welcome to also contact their Regional MS Society for further information and advice.
Parents, children, teenagers, students, families, carers, health professionals, employers, teachers and general information.

Visit the MSNZ website https://www.msnz.org.nz/ 

Please Support the Important Work of Wellington MS

Please consider making a donation to Wellington MS if you are able to, to support our important mahi enabling people with MS throughout the Greater Wellington region to live their best lives.